July 26, 2016 12:50 - 2:05 pm
We will explore the relationship between the healthcare industry, the research community and the public in the developing healthy and trustworthy models which may allow data to be used for individual and society level benefits. We will also discuss models of private-public partnerships in data sharing, the real world evidence paradigm, new models of data usage, innovative governance models, and the public voice: public opinion on data sharing and models of effective public engagement.
Speakers from industry, research and public angles will present and debate evidence-based arguments, details of existing and emerging programmes of change in this area, and the desired future landscapes of data sharing. The panel will use the Farr Institute of Health Informatics’ expertise in innovative governance, trustworthy data reuse and industry engagement as a framework for the discussion. There will be reference to the HealthNorth initiative led by the Northern Health Science Alliance Ltd (NHSA) across the North of England. Commissioners, providers, science, tech and culture are brought together in an ARK - a trustworthy, regional innovation centre to produce timely actionable information for the people it serves.